Seeing Mike's post, it is clear we had (of course) very different experiences yesterday. When Mike says "it went fine, hitchlessly", I think he means that I didn't end up hospitalized with a bad drug reaction, or the chemicals didn't explode my vein, or any number of potential horror stories.
From my point of view yesterday actually was the worst it's ever been (although the private pod was nice). I started feeling pretty sick about half-way through the infusion, when usually I can make it until the next day or even the following one before really feeling "hit". Mike and the nurse over-ruled my desire to get home before taking any further anti-nausea meds (I'd already had a pretty strong one in my drip) and so I got more before I left. This one makes you really sleepy and out of it, and I don't even really remember getting out of the car and going splat on my bed for an hour or so once we got home. After that, the evening and all the way through the night was spent trying to get the nausea, stomach cramps, headache, and insomnia under control. I was up/down all night, trying to remember when I last had what and wondering when it would all stop. Mike slept in another room and I'm glad because I'd have kept him up all night.
This is starting off really rough. Today I see the beginning of the "fungal" overgrowth on my tongue, which means my mouth feels and looks like slime-central and nothing tastes like it should. Since my stomach is whacked out anyway, I suppose slime-coated taste buds is really not a bad thing. This will last for 5-6 days, although the doctor gave me several new things to try this time to try to get it under control.
I'm glad to be at #5, but I am by no means past the evil parts yet. I think they'll actually be pretty constant straight through to #6. Not unexpected at this stage but an all out bummer for me. I did get to see S again yesterday, the old friend from our support group the first time around, and she brought me a free "cuddle pillow", which now travels about with me.
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6 comments:
Oh Diane, I am so sorry to hear this most recent one was so rough. That just plain sucks, there's no sugar-coating it, except to say there's just one more to go. But for now I am sure it feels awful to think of any additional treatments. We're sending lots of hugs and good vibes your way.
:-(
Lo siento, Dohala... man!! That totally sucks! Wish I could be there to give you a hug!!
Try to stay strong & know that even though it sux bigtime, it'll be good for ya in the long run!!
Ugh!! (trying to empathize from many miles away!)
Stay strong kids. You're almost done with the evil chemo.
Love you!
Sara
Ok, forget the chocolate for now as the visual you just gave me has slimed my tongue too! Empathy babe, and it's all for your!
Diane, I'm thinking about you--what a drain to go through this. I will send you strength rays.
Hello Diane Ohala:
Patep just taught me how to post to this thing! Tee hee!
Patep, Bruce and I have been talking about you all afternoon. We love you and miss your mug. We are in Montreal.
Sorry you're suffering honey.
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